*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
Thursday, July 29, 2010
what an amazing day!
what a weird yet fantastic day! i had a wasp fly out at me from my gas tank cover, almost got run into poles on the way to the airport. we met a very nice man that helped ua along a bit since i had 2 large carry-on bags & i was pushing the wheelchair. we had mad turbulence (i hate flying) and a crazy car ride to the hotel. i was able to get a mini tour of the city. it's sooo beautiful here! but getting to the conference has already been amazing! we got here, checked- in, registered for the conference, and finally had the chance to look around. i spoke with the orencia reps & found out there are no side effects at all & no warnings. they answered quite a few of my questions. tomorrow i will be taking advantage of the "ask a rheumy" booth. i'd like some other opinions on her raynaud's & how controlled her arthritis is right now. i was able to speak with a teen that's had ja for years, & i finally found another parent that has a child with raynaud's!!! you have no idea how wonderful that was!
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