My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too)

*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!

About our family

My family includes me, my husband, Kevin, our 17 yr old, Gir, 8 year old Zachary, & my middle child, Emily. Em is 10 & she has Juvenile Dermatomyositis, Mixed Connective Tissue Disease (a sister to Lupus), which includes Juvenile Rheumatoid Arthritis, Scleroderma, & Raynaud's Phenomenon. Our Zachary was just diagnosed with Juvenile Psoriatic Arthritis. His psoriasis has been very, very bad, but we have now learned that his jaw is affected with Juvenile Arthritis. His fingers seem to be involved, as well. We have crazy problems, but in our house we love each other & we all get along wonderfully. My dream is to become a nurse practitioner one day.

1 comment:

arthritisMay 23, 2012 at 7:35 AM
She's so pretty cute, and lovely girl, has very nice smile. I was suffering from arthritis too but I'm already getting older. Dealing with arthritis is not easy, specially those kids that they have arthritis. Thanks for sharing your blog. Wish to have more good health to you "emily"
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