About our family

My family includes me, my husband, Kevin, our 17 yr old, Gir, 8 year old Zachary, & my middle child, Emily. Em is 10 & she has Juvenile Dermatomyositis, Mixed Connective Tissue Disease (a sister to Lupus), which includes Juvenile Rheumatoid Arthritis, Scleroderma, & Raynaud's Phenomenon.  Our Zachary was just diagnosed with Juvenile Psoriatic Arthritis.  His psoriasis has been very, very bad, but we have now learned that his jaw is affected with Juvenile Arthritis.  His fingers seem to be involved, as well.  We have crazy problems, but in our house we love each other & we all get along wonderfully. My dream is to become a nurse practitioner one day.

1 comment:

  1. She's so pretty cute, and lovely girl, has very nice smile. I was suffering from arthritis too but I'm already getting older. Dealing with arthritis is not easy, specially those kids that they have arthritis. Thanks for sharing your blog. Wish to have more good health to you "emily"