The rheumy's office called me several times on Monday and again today due to her white cell counts. They should be between 4.27-11.40. I'm not 100% sure exactly what hers are, but the camp nurse said it's around 2. She's not sick, she's having a great time from what I've been told. They were supposed to get back to me on what was happening with her treatment plan this week but I still know nothing. I know that the camp nurse said she still hadn't sent an email that she was trying to send since 8 A.M., & this could wait so I don't fault her. I just hope that I know something of what to do before she gets home. Now I'm not sure if I will need to hold her Methotrexate on Monday or not. I'd rather not. I realize that having such a low immune system isn't that great, but I truly believe that it's the injectable MTX that's turn her fingers back to almost fingers instead of little fat sausages. Not to mention that she finally has a bit of fatty tissue on her arms again. That makes it so much easier to inject her.
Oh, & I got our conference registration confirmation & our room confirmation! I'm so excited!!!!! This is like a dream come true for me. I have spent so many hours researching arthritis, scleroderma, Raynaud's, related matters, & also reading boards, trying to help others. And they make it fun & educational for the kids. Who could ask for more? Not me. Just over a month to go... :)
*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
Thursday, June 24, 2010
A low ANC is a great way to scare your medical staff
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