*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
Friday, June 25, 2010
Last night away from home
My little one will be home tomorrow! I can't wait! Her doctor's office called again today. The nurse was going to find out for sure if I need to hold on her meds until our next appointment, but I haven't gotten the call back so I assume that's a yes. I found out that last week her ANC was a 2.5, and this week it was a 2.0. That would be why they were panicking. *sigh* She can't catch a break. Somehow she hasn't gotten sick yet, or hasn't given anyone any idea that she's sick. Guess I'll find out tomorrow. I'll let ya know :)
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