What a crazy month June was!!! This week is a hospital week for us, barring any other natural disasters. We drive up tomorrow for an overnight. Emily will have her Remicade, Orencia, and IViG tomorrow. We were supposed to go last week, but we had severe storms tearing through our area. When I looked at the weather maps, everything showed big storms heading towards our hospital. So, I changed the appointment to Thursday. Next thing I knew, they predicted the storm to hit our hospital that Thursday, and many of the major roads in my area were closed due to flooding. These were areas that many didn't even think were flood zones! My parents were in a rather large area that was evacuated. They were not going to leave despite water covering a road directly behind them! I panicked, but I finally convinced my dad to come stay with us. I really, truly thought that they would go home to a soaking house, but thankfully that was NOT the case. In fact, by Thursday I was kicking myself for not keeping the Thursday appointment. That's okay. We will go this tomorrow.
Em's doing much better than I thought she would be, actually. She's had a couple of random things pop up. She had a bad knee day, she had a bad knee and hip day, she had a bad ankle day. Overall she's done very, very well. Especially considering that last week was already a week later than she should have gone, meaning that now she's two weeks past her normal infusion day. What's more, she's been dancing around, and acting silly... with energy! I am sure that some of it is the bed. She is so excited about having her hospital bed, and she has finally slept so well that she feels better. I'm certain that it's also partially just being home that helps. I am so happy that I can accommodate her that way. My only concern with her is that she has some sort of skin thing going on. At first glance it looks like bug bites. She's had this happen before. When she was in the other bed and the other room she would get these things, but her brother wouldn't. Now she's in with her sister in the new bed and again, it's only her getting them. No one else in the house has anything like this, and when she's gone outside she's had jeans, socks and shoes on, but they're on her feet and legs. I took pictures to show to the doctor. I suspect that it's something autoimmune. It's just strange. I'll have to try to google it tomorrow. If ya'll have any ideas, feel free to shout them out! Many of them are on her thighs, and not something I feel comfortable posting pics of, but this pic is one fully formed and one starting out.
Emily had a great time at camp, too! She had a really great week. She had some truly wonderful roommates! Zach had some great roommates, too, but he's still pretty young and a momma's boy. He said that he's never leaving home again. His stomach gets badly upset when he's away from me; apparently his stomach hurt all week. Poor little man :( He didn't have that much fun, but it wasn't for the camp's lack of trying. They did everything that they could. Below is Emily, Zach, and Kevin while getting checked- in at camp!
Well, I will try to update either Tuesday or Wednesday. It should be interesting sleeping in the hospital with both kids with me again... (Sigh) We'll get it figured out. Ta-ta for now! :)