Emily is doing pretty well now. The flare actually started to get better instead of worse! I am so grateful for that! She has had a pain at the top of her sternum this week. I'm not sure what that is yet. I was planning on asking her doctor last Tuesday but somehow I managed to forget with the whole myositis flare coming up. She's pretty much over her cold, and doing really well, actually. I'm hoping that this newest Prednisone decrease will start to help the swelling come down more and more. She's still got so much in the belly that makes it hard for her to do all sorts of things.
Kevin is surviving no thyroid meds for a month. It's getting a little more difficult day by day, but he's hanging in. He had his labs drawn Friday, so hopefully his doctor's office will call back (and normally they don't return calls... grrrrr) to say that his hormone levels are at a good enough point to get the radiation pill this week. That will mean a 3-5 day trip to the hospital for confinement, then a full body scan. After that he can go back on his meds. I'm hoping they actually call back this time. He'd like to get back on with his life, please.
*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
Monday, February 7, 2011
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Sending love and healing hope...call me any time.ReplyDelete
Praying for you and your parents!! I know what you are going through to some extent! My mom and dad decided to do a living will so that Lisa and I wouldn't have to make decisions such as "do we pull the plug or not?" You are amazingly strong woman and I am honored to know you!! xxooReplyDelete