Have you ever known that something was wrong and been totally blown off? I'm assuming most do, & therefore know how frustrating, helpless & upset it makes you feel. It can make you feel like things are spinning out of control fast! That has been my last ten days. She would get better, then worse, then better. Just when we thought the fever was gone it would come back. There is so much I want to say, but my phone only takes so much text.
I have faith that this is where we are supposed to be & she is in good hands. At first we were told they want to keep her here at the hospital for 3 days. They are debating on 5 now so she gets more solumedrol. I still don't have any answers but that's ok because at least they are trying to pin down what's wrong!!! I have always been the type that wants to know what we're up against & we'll deal from there. I can then research the heck out of it and figure it all out. As terrifying as it was for us both & as much as we miss the family I know we're on the right path!
*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
Thursday, October 14, 2010
So, here we are...
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Oh Danielle, on the one hand I am so happy that Emily is being taken care of, and on the other my heart breaks for you. I hate that any of us have to deal with this. BUT praise God that Emily is getting the medical attention that she has so desperately been needing. I am continuing to pray that the Lord lay his hands on Emily and bring her comfort, peace and healing. Although I am here in NC while you are there in FLA please know that you are NOT ALONE.ReplyDelete
Thank you so much, Amy!!! I appreciate it. Prayers are always welcome and sought after!ReplyDelete