*My 13 yr old is an old lady that turns purple*
My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
Saturday, September 11, 2010
Please play golf for a good cause!
To the Florida golfers: there's still time to register to enter Patrick's Putt Away the Pain tourney! It's in Odessa on September 17th. This tourney helps to send children with rheumatological illnesses (like lupus, scleroderma & juvenile arthritis) to camp. They need overnight camps with doctors on staff to administer their meds. Please help support a great cause & have fun doing it!