*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
Monday, August 2, 2010
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I found this to be very helpful. I try really, really hard to understand my child's illness. I think I do a pretty good job; at least, I hope so. That said, I still don't know how she FEELS daily. Part of me knows that I wouldn't want that pain. But I'm curious. I guess that everyone that doesn't live with a chronic disease is. The Spoon Theory may not help to understand the pain itself, but it gives you pretty good insight into the life dealing with it.ReplyDelete