*My 13 yr old is an old lady that turns purple*
My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
I found this to be very helpful. I try really, really hard to understand my child's illness. I think I do a pretty good job; at least, I hope so. That said, I still don't know how she FEELS daily. Part of me knows that I wouldn't want that pain. But I'm curious. I guess that everyone that doesn't live with a chronic disease is. The Spoon Theory may not help to understand the pain itself, but it gives you pretty good insight into the life dealing with it.
I found this to be very helpful. I try really, really hard to understand my child's illness. I think I do a pretty good job; at least, I hope so. That said, I still don't know how she FEELS daily. Part of me knows that I wouldn't want that pain. But I'm curious. I guess that everyone that doesn't live with a chronic disease is. The Spoon Theory may not help to understand the pain itself, but it gives you pretty good insight into the life dealing with it.
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