*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!
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Friday, June 25, 2010
Last night away from home
My little one will be home tomorrow! I can't wait! Her doctor's office called again today. The nurse was going to find out for sure if I need to hold on her meds until our next appointment, but I haven't gotten the call back so I assume that's a yes. I found out that last week her ANC was a 2.5, and this week it was a 2.0. That would be why they were panicking. *sigh* She can't catch a break. Somehow she hasn't gotten sick yet, or hasn't given anyone any idea that she's sick. Guess I'll find out tomorrow. I'll let ya know :)
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