tag:blogger.com,1999:blog-8028594537813006872.post3122221610535977857..comments2023-03-15T05:49:52.343-04:00Comments on My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too): Good news/ Horrible appointment (Very long)Amadayhttp://www.blogger.com/profile/07951303205524536934noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8028594537813006872.post-89682622947679196022010-12-30T00:06:18.804-05:002010-12-30T00:06:18.804-05:00Hi, My daughter was diagnosed with JRA the week be...Hi, My daughter was diagnosed with JRA the week before Thanksgiving of this year, and to be honest I had heard of it, but knew nothing about it. No one I know knows anything about it…yesterday I started a blog for my daughter and I found numerous blogs about kids with JRA and I’ve slowly been reading them and it has been so helpful to read some of this. I came across your blog today; first off my heart goes out to Emily, I just read your most recent post and I’m so happy for Emily’s turn around the past few days, that’s awesome!<br /><br />I was reading your post “Emily’s Story-Why I blog” and you had mentioned if anyone had any JRA questions to ask. I read in that where you had said “She has poly-arthritis, which is 5 or more joints involved. Most poly children do not test positive for ANA, which stands for Anti Nuclear Antibody.” Bevin, my daughter, had Poly as well, currently both hips, both knees and her left ankle are affected…possibly more, but she’s 1, so the doctor is not able to fully tell every joint as she can’t specifically tell him, and we think its been going on for some time so she may be use to the pain where it’s not really pain to her anymore…anyway, Bevin also tested positive on her ANA (negative on her RF thou) and I don’t really know a lot about it or what a high titer is…Her ANA Pattern 1 (ANA PATTERN, SER, IF) was “4+HOMO” and her ANA, TITER, IF was “>=320” and her DNA ANTIBODY (DOUBLE-STRANDED) CRITHIDIA, IFA was Negative…I only understand what the negative and positive mean…you seemed to know a lot about the ANA and I was hoping you could pass some of that info on, or point me in the direction of where I can look.<br /><br />Bevin’s pediatrician is awesome, but I’m not super thrilled with her Rheumatologist, we’ve only seen him once and will see him one more time before he retires next month, then we will see his replacement…I kind of feel like he’s already checked out of the job…so I’m kind of trying to find out everything I can prior to the replacement coming in so I can have all my questions prepared.Nicolehttps://www.blogger.com/profile/00207906868551544748noreply@blogger.com