Also, she had physical therapy today & yesterday. I was at work for both sessions, but Kevin told me that she was jumping for jump rope, doing hopscotch, and actively participating both days!!! The last couple of months it was hard to get her to do anything other than swing. And the steroid rash that she had is lightening up, she's not as blotchy, and her Dermatomyositis rash has gone from red to a brown- definitely fading! :) I'm hoping hard that maybe we'll be given a decrease to weaning schedule when we go back to her doctor on January 5th!
I have 2 prayer requests for any that wouldn't mind. The first is for a lady on my Juvenile Myositis boards. My heart breaks for her! "Please keep my family in your thoughts and prayers. As Aidan approaches his one year diagnosis anniversary this January 1, his father, my husband Tony has taken a turn for the worse with his Melanoma (cancer). Hospice has been called and will be coming in to help alleviate some of the stress. Tony's days are numbered and we certainly could use some extra prayers during this time. We, the McDaniel Family, have had one heck of a year. Thanks so much and a blessed New Year to everyone! Karianne"
Next, I found a request for a child that is a relative of someone else on my myositis boards. I cannot imagine this being wrong with my child, either. They write: "
Dalton's kidney biopsy showed that he was having cellular acute rejection which is usually reversible. However, after several days of treatment his kidney function continues to worsen. I just found out that he also has antibody mediated rej...ection, which usually causes graft loss. This means that his body is making specific antibodies against his transplanted kidney. In an attempt to remove these antibodies from the kidney he needs to have plasmapheresis. Please please please pray for a miracle for Dalton!!! I will give an update as soon as I know more." If ya'll could take just a minute or two out of your busy days to please help these families, I'm sure they would appreciate it. Thanks!